My intent is not to judge anyone who has chosen choice over life. My heart is heavy for these precious children who can't speak for themselves, and I find my heart doing the talking today.
I am for life, no matter what form it comes in.
I am for life when it means a baby has a grim outlook.
I am for life when it means that baby may grow up to be severely disabled.
Sasha is a precious little gift from God. He is 6 years old, but is not able to do much of anything right now. He is very much still a baby. He may have CP as well, but is considered severely delayed. He does a lot of rocking…in his crib, in his stroller…to keep himself occupied. He has teeth marks in his tongue from chewing on it from boredom. We do not know if he truly has autism, or he is just so severely impacted by the CP or other birth trauma that the caregivers can't really do much with him, and he turns to himself to soothe.
Sasha desperately needs a loving family, and experienced, patient family who can celebrate every step of progress as a miracle of God! I can't wait to see the person he becomes when he has a family to love him and encourage him. He will surely remain bedridden for life if he is sent away, and he is facing that soon.
I am for life when it means a child won't be beautiful- by the world's standards.
Kacey has Apert Syndrome.
From an adoptive family who met her in August 2011: She is very active despite her limitations with feet and hands- she kept up with the whole bunch. Very determined, a bit shy.
From an adoptive family who met her in November 2011: Every day she'd walk up to me and say, "Mama?" It broke my heart to tell her no.
Jeanne has a birth defect of her eyes. We do not know anything more than that at this time, only that her vision is impaired.
I am for life when a child may never feed herself- ever.
Milena is 3 years old. She has had heart surgery and her heart is fully repaired. She is currently fed solely through a nasal-gastric feeding tube. She weighs just 11 pounds. She is significantly delayed. She can roll from back to stomach and sit for short periods of time with support. When placed in a walker, she can not move it with her legs. She will pick up toys and hold them when they are handed to her. She plays with them by knocking them together or shaking them. She makes eye contact and tracks moving objects.
I am for life when a child may never walk or run or jump or play.
|Jaxson and his mama|
"Jaxson has changed our lives, and the lives of so many others. He makes us better, more compassionate people." ~ Lacey Rugg
“Our daughter Katie is almost ten years old. She is the size of a two year old and functions on the level of a three to six-month-old. Her brain and body were irreversibly damaged by years of deprivation on every level. She is completely dependent on us for her care. She understands very little language. She wears diapers. She’s non-verbal and tactilely defensive. She cannot walk, crawl, suck or chew. She cannot feed herself or dress herself. She takes all her liquids through a feeding tube. If she becomes very upset, she has a tendency toward auto-aggression. She has some odd habits, makes various socially-unacceptable noises, and does not regulate her emotions very well. She has difficulty maintaining eye contact. She is learning to tolerate toys, and has progressed to shaking a rattle. She has extremely fragile bones and must be lifted and handled in certain ways.
That sounds like a daunting and scary list doesn’t it?
What that list doesn’t tell you is that our daughter came to us bearing gifts that have enriched our family in ways nobody could possibly measure. She loves life. She is sweetness personified. She has personality, opinions, spunk. She has taught us how to understand her without speaking one word. When she was sick and her smile and giggle disappeared for a couple of weeks, a cloud hung over the whole family. Since she joined our family a few months ago, our tiny survivor-girl has caused the love in our house to grow exponentially. Now we cannot imagine our family, our life, without the priceless gift of Katie.”
I am for life when a child is given just a few years to live...or just a few days...
|Max June 1-16, 2011|
"Today our little Maximilian was born. He was utterly beautiful, and we celebrated his safe and triumphant delivery. It was such a happy, joy filled day."
And that is what I choose to remember on the 1st of every month, the overwhelming joy Max brought to our lives. If I had to do it all over again, and had to face the same outcome, we would without hesitation or reservation.
My life has been forever changed by our beautiful son, no one is too small to make an impact on the world. And that is what Max did.
I am for life even when it means that my life might be completely turned upside down, inconvenienced, possibly never be the same again.
I am for life whether a baby has - as one doctor told me after Lily was born- "the Cadillac of chromosomal issues" (Down syndrome)... or if it has Trisomy 13 or 18.
I am for life.
And it may make me sound judgmental, because women's choice is involved. It may not make for a popular message or blog post. It may make people feel guilty - but that is not my intent. My desire is to be a voice for ALL life, to make a stand for those who are rotting away in orphanages on the other side of the ocean, as well as those who are lying safe and protected in their mother's womb.
Because who decides which life has value?
I fully believe we need to shine brightly the message that our children are beautiful, are capable, are worthy of life- because they ARE.
And so is this one...
"When my firstborn son was just 11 months old, we got the diagnosis that changed our lives forever. We were told that our child had SMA; which is short for Spinal Muscular Atrophy. A genetic, neuromuscular disease which has no cure. He would never walk, crawl, stand or do anything independent of us. And we were told he would probably only survive for 3 years."
"Ryan has been in and out of the hospital more times than I can count. Because of the weakness throughout his body, swallowing and clearing secretions from his airway are very difficult for him. He can catch pneumonia from what others would experience as a mild cold. Because of this, we have to be extremely careful in protecting him from germs."
"SMA does not affect the mind. Ryan attends a normal high school and is currently a sophomore. He has a 1:1 nurse with him at all times. SMA in many ways is like being paralyzed; meaning that he needs someone to do just about everything for him. Toileting, showering, dressing, brushing his teeth and even positioning him in bed at night. He usually turns on average about 5 to 8 times per night. Sleep in our home is broken up much more than it has been for any of our newborns ever was! But, most nights we have an attendant to help turn him. He still has feeling, so he lets us know when he needs to be turned. I rarely lose my patience with him as all I have to do is imagine myself in his shoes. I cannot imagine laying in bed and being unable to move at all or scratch an itch. Having said that, this disease is challenging every single day of our lives."
"Overall, Ryan is a very content and happy young man. He will be turning 16 in just 10 days. A milestone we never thought we'd see! And we couldn't be happier to have him in our family. He is an amazing kid with an amazing attitude about life. And he knows that even though his earthly body does not work like it should, his heavenly body will."
I am for life.
For you created my inmost being; you knit me together in my mother's womb. Psalms 139:13
Before I formed you in the womb I knew you. Jeremiah 1:5