Mama said I could have free rein on my blog tonight. She said I could write about anything I wanted! I had to think about that for a minute...
And then it hit me- this is my chance to tell the world what I think about Down syndrome! Oh, this is gonna be GOOD!
First of all, I just wanted to say that even though I have an extra chromosome, I'm really just like any other kid my age in so many ways. Lovable, feisty, incredibly brilliant...you know, the usual stuff.
Mama says that having an extra chromosome makes me extra cute. That really comes in handy sometimes, because I've found that I can do just about anything I want- yank the dog's tail, eat my mom's lipstick, throw yogurt all over the floor - and all I have to do is pull a cute face like this one, and all is forgiven!
And every now and then someone tells me "No no, Lily!" when I pull my shenanigans...but I just laugh...
...because I know I've got them all wrapped around my bent little pinkie!
When I was born, Mama read that kids with Down syndrome can sometimes be a little stubborn. So far I have done my best to live up to that description. I wouldn't call it stubbornness, though. Maybe persistent or determined is a better word...
Because determination can go a long way in helping me to do things that I really want to do!
And that's one thing my family has all noticed about me- it might take me a little bit longer than other babies my age to hit typical milestones like crawling and standing and walking...but I work extra hard at learning those things. There isn't anything I do that my family takes for granted, because I work so hard at it all. It's a team effort, and every single person in my family is helping me to learn, and cheering me on. So when I nail something- like standing up or signing a word - you can bet there's a big party goin' on here!
Mama says that's the blessing of Down syndrome- we get to celebrate all the little things that so often get overlooked in life. My extra chromosome causes everyone to slow down and stop and enjoy the ordinary miracles of life.
There's something else I want you to know about Down syndrome. I'm really not suffering from it. I am so treasured and spoiled and loved by everyone who knows me, and I really have the best life. So if you ever hear someone say "she's suffering from Down syndrome", please tell them to stop by my house and visit me some day...and see how much I'm suffering...
Something else I've heard Mama say is that some people don't want to bring a baby who has Down syndrome into this world, because they think that child will be a burden to their siblings. Well, I just want you to know, my brothers and sisters all fight over me! Every single one of them says I'm their favorite, and nobody ever calls me a burden!
I mean, how could anybody with such rock-star status like me be a burden?
In fact, Mama says that next to salvation, I'm her greatest gift in life. She says it actually scares her that she used to pray for a baby without Down syndrome. Can you imagine if God would have answered her prayers?? She would have missed out on me!!!
....good thing God's a lot smarter than Mama!
One last thing I want to say about Down syndrome. I've been thinking a lot about one of my friends who shares my extra chromosome. My family prays for him all the time, that someone would go rescue him. It makes me so sad that he doesn't have a family like mine, to love him and tell him how special he is. No one to tuck him in at night, like my mama and daddy do for me. Nobody to give him kisses or cheer for him when he does something good, and nobody to comfort him when he's sad or lonely. Now that's suffering.
So will you do me a favor? Will you give just five dollars to Artem's grant fund on Reece's Rainbow, so that a family will adopt him? If we can get his grant fund up to $10,000 by the end of this month, there will surely be a family who comes forward to claim him.
Five dollars is such an easy thing to give. I think we have that much change lying around in between the cushions of our couches! Mama says that Artem's grant fund has grown by almost $1,000 in less than a week- just by LOTS of people giving five dollars or more! So it's working!
What do you say? Will you help us save Artem???
I just know you WILL!!