Thursday, March 1, 2012

targeted

I have so much brewing in my brain right now, that I hardly know where to start.

If you haven't read about it yet, there has been a new test introduced of late that screens for Down syndrome in the first trimester of pregnancy.

There is so much I could say right now about this test...

Like the fact that genetic testing is listed under this administration's health care bill as "preventive care."

...how do you prevent Down syndrome? One word.

Yes, I'm going to talk about abortion on A Perfect Lily. This is my blog, and I'm not ashamed to say I am 100% prolife.

Or the fact that the current termination rate for mothers receiving a diagnosis of Down syndrome is around 90- 93%...and up until now those diagnoses could only be made accurately using invasive tests in the second trimester. What will the numbers look like now?

Or how about the question of who will pay for this new test- which at the moment goes for $1,200 a pop ? Combined with the current debate as to whether this test should be "mandated" by the government under preventive care...meaning you and I will foot the bill for that $1,200 per person test if someone doesn't stop this train.

And if you think this test is about "options" for pregnant women, think again.

This is about execution, execution, execution, baby.

And if you think this test, and the options that it provides don't run the risk of THIS, you need to pull your head out of the sand.

And if you think that targeting a group of people for termination couldn't ever happen in today's culture, wake up.




It's happening right now.



I'm working on a post including more information and thoughts concerning this test. I'm looking for photos of your loved one with Down syndrome to include in it. I am very concerned about this test and its implications, and I am very concerned about where we are headed as a society.

Some posts here are light or entertaining in nature, and I wish every post could be one of those. But when I read articles like the ones I linked to above, I just can't bury my head in the sand.

"‘All that is necessary for the triumph of evil is that good men (or women) do nothing’.


If you are able/willing to let me use a photo of your loved one with Down syndrome in an upcoming post regarding these issues, please send one to my email, including your loved one's name and permission to use the photo, by Monday, March 5th.

44 comments:

Christi Harrison said...

I agree with you 100%!

jaqy said...

It's so sad that people won't choose to go through with these precious children. I'm prolife (but prochoice, for the sake of rare emergency conditions) - even if I had known my son would have so many issues, I would have NEVER changed it.

Elle's mommy said...

Fully and completely agree....ugh I hate this world! Heaven with my baby girl sounds more perfect every second! Love you sweet girl...people are so selfish...life is about loving others not loving yourself! Thanks for writing and educating me...

Elle's mommy

Becky said...

I am glad you speak up on issues like this. It is really scary to me where this world is heading because people are playing God. I look forward to reading what you put together.

Monica (Jakel) Crumley said...

Thank you so much for writing this, Patti, and helping bring attention to this abomination. The image of Lily you chose was PERFECT!

Crystal said...

I've been working on a blog post in my head on a similar topic...we'll see if I can find time to write it. Go Patty go! We need a billion more of you in this world!

Anonymous said...

I actually had this test done when I was pregnant with my second child and quite honestly only had it done b/c I wanted an ultrasound to see my sweet pea and you get one with this "test". I myself am 100% pro life so no matter what the outcome was, I knew that I would never terminate. Well, my results came back with an increased risk for DS. I went to a geneticist who basically said that the test was so inaccurate b/c if I had had the test done even one hour later my numbers would have been totally different. He recommended an amnio so we would know 100% but the chances of miscarriage were greater than the chances that he actually had DS. I opted for no amnio and just did the detailed ultrasound at 20 weeks and everything looked fine but still there was no way to know 100%. He was born without DS and I will say that test caused lots of unnecessary stress and worry. I would have kept, loved and still felt very blessed with a son with DS but still it caused my whole pregnancy to be different than it should have been. The only good is that maybe if the baby did have DS then it would give you 9 months to prepare, research, find good therapy options, etc. But it also lets many people have abortions and amnios that cause miscarriage for no reason. I would never do genetic testing after this experience but we are done having kids so I guess it doesn't really matter in my case! Your Lilly is precious!

Patti said...

Anon- this is a completely different/new test - not the quad marker. It is over 99% accurate. You can click on the first blue link in my post to read about it.
I agree that IF the purpose of this new test were for preparation, it would not be a bad thing. Unfortunately, that is not the driving force behind it.

Kiara Buechler said...

Thank you for posting about this Patty, it has been on my heart lately and it is good to see others who are getting the word out.

Anonymous said...

Okay, I should have read the article first. I totally agree with everything you posted and think it is so sad. I was trying to reiterate that a test would only be for good if it was for preparation (which is how I would have viewed it) rather than elimination. When I heard about my increased chance I immediately started praying for God to prepare my heart and mind and then started researching DS to prepare myself. I ended up in the end not needing it but still feel that the test was not a positive thing. It is sad what our society is coming to. I have a cousin with DS and you couldn't ask for a sweeter more kind person! All the best to you and your family

nicole said...

Couldn't agree more. How very, very sad to think of all the precious souls missing in this world. The last thing we need is more abortion which will be inevitable with more testing!

my family said...

I will be sending you a photo of my handsome boy. I hope u allow us to share your post on our blobs. I'm sure u will. Thanks in advance for blogging about this important issue

Looking Up said...

I could not agree with this post more. In fact, I posted on The Congressional Down Syndrome Caucus' FB page about this subject just a few days ago. I expressed my concern that there are those in our government who feel that DS is something that maybe "prevented", therefore they see no reason to increase federal funding for research to help improve the lives of those who happen to have DS. If this is not the case, then I would like for the NIH to explain why, despite the fact that DS is one of the most commonly occurring genetic abnormalities, it is also one of the least supported by NIH funding. From what I understand, federal research funds for DS were cut by 10% just this past year. Wonder how much funding was put into developing the prenatal testing, though..hmmm.....As a community, we really need to make our voices heard & let our government known that our kids are not problems to "be prevented or terminated"!

karen said...

I have have been reading your blog for a long time now and I am not sure if I have ever commented. I feel I must now.

I always knew that I could never have an abortion. But I always felt like I was prochoice. Well atleast I wanted to be.............I kind of always waivered when presented with the image of an actual baby.

I have changed my mind after reading that article. There aren't even words to describe how horrifying that is. I can't believe that the article was even published. I just don't understand how anyone could suggest such a thing. It doesn't even seem human.

Kristi said...

I agree 100% with you...

Anonymous said...

All i can say is that our kids are worth it 1000% they are sooooo worthy of life and are soooo needed in this cruel world! Addison is my first child and i may want the test just to know in advance, but never to eliminate my future God given children!

cara said...

SO glad you are speaking about this Patti, and one of the many things I love about you. You speak the truth. Benji's PT and I were just talking about this today at his session. Our precious children are being targeted. What a great title for your post because it is TRUE!! SO glad to be able to stand up and say something. I will be sending you my pic. Love to you.

gwen said...

I have a child with Down syndrome and I WOULD take this test with a future pregnancy. I think every woman should be given proper information and support when receiving testing or a diagnosis. The test is going to be offered, we should make a point of making sure that there is support in place for those women who continue the pregnancy.

What is the point of these posts? Do you not want women to have access to these tests? I'm just curious...

Anonymous said...

I struggle with this. I consider myself pro-choice. I know that label becomes “pro-abortion” in the mind of many, but I am 100% anti-abortion. It is terrible. I get that. But I also get that we are NOT going to change the minds of desperate women, whatever the cause, who feel the need to seek an abortion.

The prenatal testing that is in place now is not going away, so isn’t it a good thing to have a more accurate test? One that comes without the risks attached to an amnio. Then, we need better education for women who receive that prenatal diagnosis. As a community we need to help women see the beauty and blessing that is received by welcoming a child with DS.

I don’t believe that limiting testing will prevent any abortions of children with DS. I don’t believe making abortions illegal would prevent the abortions of children with DS. Desperate women would find a way. To make abortions of children with DS less common we need to work on embracing the women who receive that prenatal diagnosis and help them, support them, love them, talk with them.

I know that many do not accept the idea of reducing the number of abortions. Only eliminating them will do. I see to idea of reducing the number of abortions much better. It is realistic, unlike the idea of eradicating abortion.

Patti said...

Gwen...I'm addressing these issues at greater length in a follow up post, the one I asked for photos for. My point of this post was that this test was NOT created for the purpose of "giving women the proper information and support." It is not being marketed that way, and it is certainly not going to be administered that way.

There is a very clear precedent, as I'll address in my next post, for a pressure to terminate and at the very least for that option to be presented when a positive diagnosis is given in the case of CVS or amnio results. The termination rate is already at 90-93% for a woman receiving those results in the second trimester, and the point of the post was that this new test- combined with the precedent of pressure or option to terminate by medical professionals- is absolutely going to result in a higher termination rate.

I am absolutely for women receiving proper information and support.
If that were the case, and if doctors did indeed routinely offer support or positive information regarding a diagnosis of Down syndrome, I would be in complete support of the test.

Patti said...

Anonymous- have you read UnPlanned by Abby Johnson? I urge you to. Abby went into the abortion industry for the very reasons you just listed. She could have written your comment 8 years ago. She spent 8 years of her life working hard to reduce abortions, as the director of a Planned Parenthood facility in Texas. What she found along the way resulted in her book, as well as a 180 turn in her thinking...I would love to send you my copy of her book if you contact me. My email is psalms127.5@gmail.com Thanks so much for taking the time to leave your thoughts here; I think this is a discussion that needs to take place in America today.

Anonymous said...

Thanks for your reply, Patty. I just checked and my local library has that book and I put it on reserve. Maybe your copy can be shared with another reader who can't find it locally. I'm interested in continuing our discussion after I read it.

Patti said...

Anonymous- looking forward to it as well ! Glad you found it :)

gwen said...

Patti- so what is the answer? You believe this test will be pushed on women and therefore more will abort. How do we make sure moms are getting the info and support they need? I believe the best thing we can do is to make a good life for our kids and push for research that will improve outcomes for their health and cognition.

I appreciate your concern and passion for these mothers and babies. I too know the joys that come with an extra special child. I would just like you to tread lightly as there may be mothers who don't share your views and it can push them away if they feel like you are pushing an agenda. I know when I was pregnant I felt very isolated being a pro choice mom who kept her baby. Just something to think about...

Patti said...

I believe the answer is to advocate for doctors to present information fairly and accurately, and offer resources for pregnant moms. This never happened with me, and as I am gathering data and researching this, it is RARELY offered.

Pressuring to terminate is not fair, and it is biased. And it is widespread.

There certainly is an aggressive agenda here, and it is not mine.

If I have any "agenda" it is to promote awareness that our children should not be targeted for termination.

angie said...

I'm so glad you wrote about this Patti. This whole healthcare topic has been giving me fits. The deeper we delve into it, I truly believe we are dealing with an evil that we can't just ignore. Truly this is a modern day holocaust. People can deny it all they want, but babies with DS are definitely being targeted for extinction. And let us not forget the second victim in an abortion- the mother who eventually has to come to terms with what she has done. Yes, in many cases, it's an act of desperation, but how can one not have their spirit destroyed when they realize later that they have destroyed their own child? This is the horrible secret that the pro-choice world does not want anybody to know about.

Looking forward to your next blog post. God bless you for speaking the truth.

Jennifer Moyers said...

Tread lightly? There is no treading lightly when you are talking about Eugenics. Eugenics is targeting a specific group of people for eradication. This test is being labeled "preventative", and that is misleading and inaccurate. The only way to "prevent" Down syndrome is abstinence.
Parents of children with Ds are the only ones who can speak up for our kids. That's not pushing an agenda, that's being a parent. If your child had Autism, and this test offered a 99% accuracy on whether your child would have Autism, don't you think the Autism community would have a problem with that? And, don't fool yourself, tests like these are coming...for Autism, diabetes, heart disease...you name it and it will come. And when it does, people are going to have a huge problem with it. So, why is it okay to have one for Down syndrome? The answer, IT'S NOT.
Patti isn't pushing an agenda, she is speaking truthfully and honestly about what is going on right in front of us.
I used to be Pro Life, even after I had my daughter Megan, who has Ds. But I have grown up and learned that ALL life is precious and it is not my place to decide who lives and who dies, period. That is God's work and I sure don't want to be standing before Him and have to answer to Him as to why I was doing His work for Him.
It's just like bullying...if you see someone being bullied, and you do nothing, then you are okay with the bullying...Abortion is no different. If you see it happening and don't say anything, then you are agreeing that it's okay...and it's not. I applaud Patti for writing this blog! She doesn't need to tread lightly, she needs to stomp the yard!

Jennifer Graham

Deanna said...

I think there should be a big difference made between aborting just for the sake of not wanting ANY baby and aborting JUST BECAUSE of a prenatal diagnosis (i.e. the baby you are being sent isn't good enough for the life you have planned, therefore she/he cannot live while you try again for a "better" baby). I don't think that discussing the latter type of abortion is pushing an agenda in the least because these tests are being promoted in an almost Hitler like fascination with "the perfect" baby and isolating the "bad" ones earlier and earlier so that the decision to end the pregnancy becomes easier and easier for that mom.

I consider myself strongly pro-life and yet after my amnio came back positive for DS, I questioned that for the first time. I didn't care about agendas from either side- I just wanted to know if I could love my baby, and the doctors were too eager to say "no, you won't"

I think these types of posts are VERY important to raise awareness of the type of crap that the medical community is feeding to these soon-to-be moms so that we can lend the type of support that we wished that we would have had. (and also stand up and say "HEY, how could you possible get a BETTER baby than one with 47 chromosomes a baby is a BABY...awareness is so important here)

Well said, Patti. I look forward to your follow up post.

Kelly said...

Patti -

This post makes me so proud to be your friend! :) Our most basic human right is the right to LIFE. When that right was taken away in 1973, America began a downward spiral. We couldn't see it for awhile, but boy is it rearing it's ugly head today!

Satan, from the very beginning, has wanted to take God out but he can't. So the closest thing to God are those who bear His image and are the most innocent: our precious unborn children. AND, as you and I know, children like Lily bear an extra-special image of God. How sad that ANYONE is labeled as "less than"...for they surely are not in the eyes of the One who knew them BEFORE they were in our bellies.

Thank you for being bold & courageous enough to spread truth. Blessings to you! :)

All.For.Hannah said...

I don't feel Patti is "pushing" any agenda. To speak one's opinion on a certain subject or matter (regardless if that opinion differs from another person(s)) is not pushing an agenda. Had she said "No one should do x,y and z" then yes, I could see that.

Further more, I agree, 100000000%. This is disgusting on so many different levels. As Jennifer Moyers already stated, those types of tests (for various other medical "issues") WILL come someday. As a mother of an autistic son, I would be beyond horrified if this had been suggested to me when I was pregnant with him. As another commenter already stated, we are living in a society that is headed down a very slippery slope in the direction of wanting to achieve "perfection". Where does it stop? We're not talking about preventing horrible illnesses such as childhood cancers or EB or anything of the like. We're talking about a human being who's make up is "different" than most of society. Again, as a mother to a child with a spectrum of autism, if someone were to ever suggest that my son is anything less than perfect (because he very much is the epitome of perfection in my eyes and heart) I would have a HUGE problem with that. Patti, I enjoy reading your blog. Thank you for shedding some wisdom on this matter, and ((hugs)) to you and your ADORABLE little Lilly!

Leah said...

I wish I had something profound to say or something that would add to what so many others have said. I don't. But I applaud this post too. Giving medical practitioners our perspective (as in parents of kids with Ds) is crucial. Helping to give accurate info to parents to be is crucial. But being aware of the true agendas involved is crucial too and I wasn't even aware of this, even with all of my uneasy feelings about what this test will mean. Thank you, Patti!

gail said...

Bravo! (You will find I tend to be a person of few words in the comment section!)

cara said...

Came back here tonight and have seen all the comments. SO thankful you are posting about this Patti!! NO, you are not pushing any agenda, only being a voice for the voiceless. We are their voices. We must stand up and make a difference, spread the word, and with the grace of God change minds for the sake of these precious children. We must fight for them. They certainly are targeted. I remember asking a nurse what the point was of taking the test when I was pregnant with Mary and what would happen if it showed up positive. She said that we could discuss options then. I knew what she meant. Options???? An option to murder my precious baby!!! Sadly, many of us have bought the lie of the enemy that these children are not worth life and we have right to murder. I use to have that veil over my eyes, but praise God He redeemed me and has lifted that veil. I pray that He will use your posts to continue to open more eyes to what this really is. Love you Patti!!!!!

Danielle said...

I wish I could help you with pictures. For all the medical miracles we have for our Lily, she isn't a DS baby. Many similarities, but not DS.

I see two positives from more accurate testing. One is to prepare parents. The other is to help indicate when additional screening for heart defects are needed. As I understand, DS increases the risk of heart problems. Diagnosing this earlier is definitely worth $1200 a person to me, but not at the risk of far too many needless abortions.

Patti said...

Danielle- I agree with you completely. This is something I'm addressing in the upcoming posts about this test- there are positive aspects to the test if it is presented with fair and accurate information about raising a child with Down syndrome. Thank you so much for your thoughts.

cathy said...

Bravo to you, my dear friend, love reading the comments---

Hopefully you are enlightening at least 1

I do wish there was a test for heart defects, simply so I would have been prepared for Christophers' dx
HOWEVER, I can honestly say I was better off NOT knowing about Cody's cancer dx--I needed to go through all the steps of that grief, to be where I am, today...

That test CAN be used for preparation, but it sure does seem to be used as a catalyst for termination of Ds

xoxo
cathy

Leslie McNeil of MarveLes Art Studios said...

Thank you for writing this post. We all need to be informed, and understanding... more. I agree with you 100%. The test's intent is pure evil, and as such, it will look 'good' in the way the abortion industry must present it --- because that is the very nature of how they get people sucked in! Evil has to look good, feel right, and is easily justified under the guise of 'women's health'! HOGWASH! We do need to stand up for life... ALL life, just as God so ordered it.

Carol said...

Although I understand why you're posting about this (you feel passionately about it), the truth of the matter is that these tests are being developed and no amount of blog posts are going to stop them from becoming readily available to those who want them. It's fair for you to believe whatever you'd like - pro-life, pro-choice, either way, you can only make up your own mind and your own decision, nobody else's. That's the truth. You can present your views here, but no amount of arguing and photos is going to change the mind of someone who a) wants to know if their child has a chromosomal abnormality and b) chooses to terminate the pregnancy because of it. The tests are created, there is a demand for them, and it's not the test's fault that 93% of people choose to abort babies with Down Syndrome. The test's existence does NOT cause that statistic, the women and families who decide to abort their fetuses make that statistic. So even if you think the test is an abomination, even if you think it is against God's will or that it is a sin, the truth of the matter is that it exists and it is every woman's right to take the test if she wishes and make her own decision about how to proceed after that. We are a society that promotes autonomy and freedom of decision for all - with regards to issues such as this one, and the ideals we are taking great strides to realize, such as freedom to marry whoever one wishes to marry, and freedom to gain access to contraceptives regardless of place of employment. I do not think our society is moving towards a holocaust. Step back from your generalizations about our society and realize that you are not accusing one cohesive body of people, you are accusing individual women with individual circumstances who are making their own personal decisions about their lives, decisions which thankfully they have the human right to make on their own and which your beliefs cannot affect one way or the other.

Patti said...

Carol...I posted this -if for no other reason- for people like Karen (comment above.)

Patti said...

There are a million things that could sink the endeavor, whether it’s competition, litigation, insurance resistance, or physician skepticism. There’s even potential for political and moral debates to sidetrack the company, as people argue over whether it’s ethical to use this kind of information to potentially abort a fetus.

http://www.xconomy.com/san-francisco/2012/02/29/verinatas-big-day-arrives-with-prenatal-down-syndrome-test-debut/2/

Laura said...

CONGRATULATIONS!!! What wonderful news!

Laura said...

CONGRATULATIONS!!! What wonderful news!

Karly Jaco said...

thankyou for posting about these issues. i didn't see this til now or else I would have sent a picture. thank you for all you do for the cause of Christ, and for all those out there who have down syndrome. who will (the unborn, yet to be conceived) and their families too!

Karly Jaco said...

thankyou for posting about these issues. i didn't see this til now or else I would have sent a picture. thank you for all you do for the cause of Christ, and for all those out there who have down syndrome. who will (the unborn, yet to be conceived) and their families too!