Sunday, January 29, 2012

myth busters

Myth: People with Down syndrome are always happy.
 
**********************

These pictures...


...make me smile. This girl has so much personality. She just oozes it. This afternoon I could hear her yelling at the kids from the other room- yelling. I was reading my husband's Kindle in the tub and texting a friend...two things you probably should not be doing in the bath. I'll spare you the pictures, in spite of the fact that I could go viral if I didn't... (inside joke, teehee)

Anyhoot, I heard a very distinct yell coming from this pint sized pixie, and it sounded very much like, "I do NOT want to be read to or otherwise distracted, I want my MOMMY!" Actually, it really sounded like waaaaaaaahhh, but being the mother of ten that I am, I know how to interpret two year old yells. And clearly Lily wanted me.


Five minutes later I was curled up next to her on my bed, asking her if she wanted to nurse, and instead of signing and saying "nye nye", she leaned over and - I kid you not- spanked me. And then yelled, "That's for making me wait." Okay, so it didn't come out exactly like that, but again- I know how to interpret toddler-ease. And little sister was ticked. *note to readers: Lily hasn't ever had a spanking. However, she may or may not have witnessed a swat on the toosh of big sister's bad baby dolls. Ahem.

 All of that to illustrate my point: she is a double dose of personality and spunk these days, and whoever said kids with Down syndrome are always happy....clearly never raised a kid with Down syndrome...

"No, Mom. I do NOT want to pose for another photo shoot."

She knows what she wants, and more importantly what she doesn't want, and Lord help the unsuspecting sibling who tries to hand it to her. We haven't heard a distinctive "no" come out of her cute little lips yet, but her deliberate "NUH" leaves nobody guessing that she has no desire to...

*play with toys when she'd rather be eating

*eat her green beans when she'd rather have yogurt

*take a bath when she'd rather be playing

*pose for a picture when she'd rather be nursing....



And how did I know that's what she would rather be doing???

"Lily, what do you want???"

(signing "nye nye" or...nurse me;))

Yes, my girl has got a mind of her own, and I'm thrilled that she does.

Kids with Down syndrome are always happy.


She is funny, she is bright, she is happy, she is mad, she is strong willed and snuggly and stubborn and feisty and gentle ....


...and she's without a doubt the sweetest little bundle of myth-busting contrariness on the planet.

24 comments:

Karly Jaco said...

I LOVE this! and i loved your interpreting toddler-ease. :) She is too cute. even in tears! sometimes the little ones just want momma time, and it's so wonderful to give it... and btw every time i try to read a book in the tub I have bad visions of it ending up dunked and soaked. *hasn't happened yet* lol Have a great week!

cara said...

Up late with symptoms tonight(or I should say morning), and I saw you posted again. This just absolutely blessed me SO much. She is WAY TOO CUTE Patti!! LOVE these pictures. That cracks me up that she spanked you. She is smart, smart!! I needed this.

cathy said...

LOVED this!

xoxo
cathy

Krista said...

Very cute! Great post Patti!

Mrs. K said...

Great pictures as usual, but where are they taken? My Lilybird has definetly reached the terrible twos 'cause she knows what she wants and she knows when she wants it. You go girl, you let people know they cannot neglect my little Lily...as if you are ever neglected. ;>)

Mrs. K said...

PS love the new masthead!!!

April Vernon said...

Awesome photos!!! She is so funny!

Deanna said...

oh my word, the bathtub comment is killing me here. absolutely killing me. (Is that another test to see if every word was being read???lol) Cute as always, Lily! We missed you!

Rachel said...

What a blessing she is:).....all of her!

nicole said...

The new header is very cute! Love Lily's personality and how she signs to nurse.

Gilda said...

Oh my goodness!!she is just so adorable just want to sweep her up and give her a big kiss & hug!love the pics so sweet.

busymommy3 said...

Beautiful pictures!! My littel one has DS and I have njoyed every moment with her! She has enriched our world!

Visit me @ http://punkymonkeychronicles.blogspot.com/

Blessings,
Lynn

Jill said...

OH
MY
GOSH!!
These pictures are SO CUTE! But I'm sorry...the one of her standing in front of the garage with the hat just a'wailing is SO ADORABLE!!! I loved reading this post! So totally cute really...you outdid yourself.

Jenny said...

These were the sweetest pictures ever!!!! I love the one where she is reaching up to you :)

Lori said...

Soo sweet!!!

CMSavage6 said...

I always take pictures of my kids crying too. They are always so much more adorable in the pictures than hearing them in person, right! But I must say Lily is pretty cute. With a big personality.

Anna Theurer said...

Oh Lily, you definitely have the toddlertude down. I always get the "so they are always happy." As a statement and not as a question. I reply with "no, you should visit my house in the evening. People with Ds have the same array of emotions as you and me". Their reply "so they are always happy, right.". Grrrr.

Pelikán said...

Oh Patti, how could you take the 3rd picture, when she is crying in the hat, she is so adorable, I would drop the camera and run to get her, how could you resist...:-)

Patti said...

mom- depoe bay!

deanna- yes! it's my shout out to all who agree that NDMMWTS...;)

pelikan- I pretty much did! drop the camera to scoop her up, that is. good thing it was attached to a strap around my neck:)

Katie Driscoll said...

Hi!!! what a sweet heART! i JUST found your blog! I am a mom of 5 boys and 1 precious girl with DS. I plan to follow your blog! Sorry for the caps I am wrestling a toddler and writing this at the saME time HA!
anyway I too have a blog 5boysand1girlmake6.blogspot.com can't wait to hear more!! :)
Katie

Maggie said...

When our daughter with DS was little my husband said that the extra chromosome, was a personality chromosome! She just turned 29, lives semi independently in a townhouse with a roommate, works as an aid for the local YMCA child care, has a more active social life than we do and is STILL a force to be dealt with! Embrace every minute of it!

lovemy3 said...

Ohhh...toddler attitude :-) I always laugh at the comment that all children with DS are happy too. They have obviously never been on our 4 hr drive to our families. Little Miss Hailey cries 2 out of 4 hours of it!

Love the pics of Lily!

My Little Wonders said...

Love the post ... and sweet Lily; love the pictures! :)

Melissa said...

Cracking up at you going viral. :)

And yes, we are solidly here too...my status on FB not too long ago was asking where my stereotypically happy child was...and it could be my status many times a week these days!