Thursday, September 22, 2011

Lily is FREE!!

YOU DID IT!!

Thank you to all of the wonderful readers who helped to free Lily! We reached 100 comments on the previous post, saying you blogged, Facebooked or donated to the iPad2 giveaway for Autumn...and now the Lilybird is back!!



The Quinns and I would like to say a gigantic thank you for helping to raise over $2,000 for their adoption of Autumn- the giveaway is still open on their blog, Anticipating Autumn, where you can continue to donate and earn entries to win an iPad2, a coach purse, or a gorgeous Gigi Hill handbag. Winners will be announced both here and on the Quinn's blog on October 13th!

And now, as promised, some absolutely adorable videos of the Lilybird.

We've been working quite a bit on signing with Lily. So far she can sign bye-bye, more, all done, baby, and she does the signs in the song itsy-bitsy-spider as well as pat-a-cake. She plays peek-a-boo, points to our eyes and nose and toes, claps her hands and "dances" on demand and stands up when we ask her to...she also raises her hands in the air when we say "reach for the sky", and she's starting to sign "change" when we change her diaper...so lots of progress!

Hope you enjoy these as much as we do...

*spoiler alert: I don't sing. as will be painfully evident in a few seconds...







Lily's therapist gave us a little booklet with removable animal pictures that are velcroed onto each page. We are supposed to take the animal off ourselves, hold it up to our cheek and repeat the sound the animal makes two times. Then we put the animal back on the page and hand it to Lily- she is supposed to take the animal off, hold it up to her cheek and say the sound as well. It took her about ten minutes of watching us do this, and she had it down!



Lily was also working on her standing while she was held hostage...



Okay, now the fun part:
I know I have readers who have been at this Down syndrome thing longer than I have. I would love to hear what you have done as far as speech therapy or teaching sign language goes...or even if you have a child without Ds or have an infant- what are your plans, what have you done, read, watched, what has worked for you and what hasn't? We do have the Baby Signing Times videos (thank you, cousin Kate!) but Lily is just now able to sit still and focus on those. So far her regular therapist (from Early Intervention) has not recommended additional speech therapy, as she is doing so well. But I'm one of those moms who tends to wrestle a little with the "am I doing enough for her" doubts, and speech is one of those areas I want to make sure I'm covering well, without missing anything. I would LOVE to hear all of your ideas.

THANK YOU AGAIN for donating to the Quinns, and if you couldn't donate, for passing the word along about our giveaway- and thank you for putting up with my crazy idea to hold Lily hostage :)

Just one more special piece of news to share: there is a new baby girl in blogland who shares Lily's designer genes. She is an absolute DOLL and I'm sending you to her blog at the risk of losing readers, because once you see what a little sweet-pea she is, you might forget to come back here! After you tell me your speech-teaching secrets, can you hop over to Baby Harper's blog  and tell her mama Kaiti a big congratulations?

Happy Thursday!

25 comments:

Mrs. K said...

oh my goodness Patti, I am all choked up and tears are flowing again. FINALLY, I get to see my Lily Anne is action. CANNOT WAIT TO HOLD HER AND YOU AND ALL THE RICE BUGS.

Mrs. K said...

Tried to comment on Kaiti's blog but it said I wasn't invited. So please tell her Congratulations for me. I couldn't even bookmark her blog. Phooey. That Harper is a DOLL.

Ashley said...

Yay! My lilybird is back! I've missed her. Sorry for holding you hostage, Lily, but it was for a good cause :)
Thank you for helping us bring my baby sister home, Patti! We love you and Lily and the rest of your family more than you will ever know!

Kelly Marin said...

AWWWW Lily is so cute! She's such a big girl, wow!

Shauna said...

Missed you Lily! You went and grew up while you were gone :) Oh my goodness Patti she is singing now...so cute! When do I get to meet this little bit of preciousness! When Autumn comes home you have to come down and we'll all get together. Here is a fun note for you...Susanna linked to my blog this week and I got over 25 hits from it...and over half of them came here or to Autumn's blog since I had that post up :) How's that for God's timing!

Runningmama said...

We do A LOT of singing in our house because we noticed that Emily can say more words when she is singing a song than when unprompted. The main thing we do that I think has helped Emily (she has over 60 spoken words now) is talk, talk, talking like CRAZY to her about everything...just like you probably did with your other kids, we just take it to a higher degree and really go over the top with it. We have also stated to give her choices for each thing we do and that encourages her to give names to objects, For instance if she is going to have a snack I hold out pretzels and goldfish and ask which one she wants and I give her the one she points to or says...even if I know she really wanted the other one (the important thing is to give her exactly what she asks for). Lily is beautiful and is doing so great, I just love her and I have never met her! Oh and I would definately make sure you get her ears checked as often as you can, getting tubes put in Emily's ears made a world of difference, she never had any ear infections, but always had fluid which was causing everything to sound garbled (kind of like the Charlie Brown teacher!).

Rachel said...

Finally getting caught up on blog reading! Sorry I missed her being jailed.

We had speech coming from infancy since she helped with feeding. But at 18 months we moved to actual language help. Your Lily has more sounds and words than Aubrey does right now at 3! So I"m not a good judge, but it can't hurt to ask for a speech teacher to come evaluate. You don't want to wait til she is too behind before getting help.

Aubrey didn't get attached to signing time til about 18 months, but we played them during nebulizer treatments and she did learn from them in short bursts and LOVES them now. We sign all kinds of things for her to give her the words, but WE stop signing once she has the spoken word or the sign down pat to emphasize SPEAKING versus signing. You gotta give the kids ways to communicate to you though, so sign away!

Kaiti said...

Alright everyone you SHOULD be able to post on my blog! Not sure how those settings changed themselves! Maybe this tired mama playing with it in the middle of the night! Let me know if it doesn't work...kbohacek@uwalumni.com. And THANKS PATTI! I promise Harper can share with Lily!

Julia said...

WOO HOO WOO HOO.... SO GLAD TO SEE MY SWEET LILY AGAIN!!

April Vernon said...

I LOVE those videos!! Thanks for sharing! Levi is so young that I don't have any advice but will be checking back to see what your readers share in their comments!

cathy said...

God bless her....

In such a few short days, she looks so much older..

xoxo
cathy

Leah said...

aww glad to see ms Lily is free! I missed her these past few days.

lovemy3 said...

Yay!!! Lily is free! Such a cutie!

Catherine said...

So glad Lily is free!!! Love seeing her do all of the signing and talking. Nathan has been watching the Signing Times videos for a while now and we try to sign to him when we're home. He hasn't picked up on any signs yet and won't clap for himself (but claps other people's hands). So we're hoping the signing comes soon!

Laura said...

I can't say enough GOOD about speech therapy! It is the one therapy that we haven't "let go." The rest of therapies are helpful for a time and for what they do. Then in our experience, your child kind of grows out of them and their usefulness. In my opinion, speech therapy is indispensible!

You can't go wrong getting an evaluation from a good speech therapist! All are not created equal so ask around for who LOVES theirs and why. Things to look for: one who has lots of experience working with children and one who has experience working with children with Down Syndrome.

They look for so much more than just sounds! Tongue position, the babbling sounds they do make or don't make, the way they chew their food, the way they drink... all give indications of issues that they could need help with. I have been amazed at what I learned through my daughter's speech therapist! She can see or hear the slightest thing and know if it will cause a problem later with producing a particular sound.

We started speech therapy at 6 months of age and our now 4 1/2 yr old is doing GREAT!!! She talks ALL the time and almost everything is intelligible for us and most of it is also understood by others who aren't around her all the time.

The younger you start, the better off she will be. There all kinds of (fun for her) exercises that they can give you to do with Lily that will help strengthen the right muscles and not strengthen mouth habits that will be hard to break her of later. Many of these bad habits I was ignorant of until we began speech therapy.

Truthfully, speech therapy is just as much for the parent as for the child. You don't want to miss what you will learn to help Lily!

(and that, in my humble opinion, is my two cents worth! lol)

Danielle said...

Suggestion: go to settings on your blogger dashboard , choose email/mobile, under MOBILE TEMPLATE choose "yes show mobile template on mobile devices". It formats your blog to be easily readable on phones for people eho view your blog on their phones :) and then pass the word to other bloggers! :)

Race Bannon said...

Seriously, does Josie need shirts? We will send him shirts.

Lori said...

Love the videos....Elli keeps pointing at the screen and yelling "baby"....seriously she will not let me turn off the videos!!! I love lily's proud little smile - she is so smart - she knows exactly how to get people to clap for her!!!

nicole said...

Awww, Lily, you were worth the wait. Your "baby" cradle is the cutest thing ever!

The Kirkland's said...

I am Glad Lily's Back! I wanted to tell you that I had an opportunity to share Lily's story and Reece's Rainbow today!! Every time I hear any one mention they are interested in adopting, I jump in the conversation and put a plug in for Reece's Rainbow! The lady I was talking to today, said she was unsure of how to handle a child with DS. That is where Lily's story came into play! I shared her a little bit about Lily and emailed her the link to your blog! Hope you don't mind! Just wanted to share that with you.

Becky K!

Ginger said...

In addition to Signing Time, check out Patty Shukla on youtube. She just has 2 baby signing videos but they are captivating according to my 20 mo old. And she has learned a lot very quickly from them.

cara said...

These videos just melted my heart!!!!! Thank you Patti. She is SO smart and precious and a perfect Lily. My kids had so much fun watching these. Give her hugs and kisses from us. Love to you all. I am SO glad Lily is FREE!! SO excited for the Quinns.

Emily said...

My daughter started speech therapy at 4 1/2 months. She's now 2 1/2 years old.

She makes her biggest improvements verbally right after she's conquered a physical milestone. She made a verbal jump after she learned to sit up, again after crawling, and most recently, after walking.

In between these jumps, Josie plateaus - not doing new skills, but not regressing either. During the plateaus, her therapist "fills the bank." She keeps introducing new signs, sounds, skills.

We make deposits in her bank for months, and, just when I think "Is she getting ANY of this?" Josie will start making withdrawals. She uses words and signs we haven't covered in a long time. It's amazing! She's always listening and learning, even if she's not clearly showing us progress.

I speak to Josie a lot - giving directions, asking questions, describing. With four other children in our home, there's a steady chatter. :) For Josie, I use signs with my words as much as possible. The extra input helps her understand my meaning - and she prefers to master a sign THEN master speaking the word.

Jonny Quest said...

Woah, Josiah! No wonder she said yes!

Laura said...

We see the same thing as Emily mentioned - plateaus for a long time, then an explosion of progress.
And yes, they are usually in tandem with conquering another milestone.