Tuesday, January 25, 2011

Abolishing Down Syndrome?

I. am. appalled.

I just read this article: Will babies with Down syndrome slowly disappear?

...and this comment afterwards, from someone called "The modern sound" ...


If you can prevent suffering, wouldn't you? Perhaps something like Type II diabetes -- a disease that is usually adult-onset and easy to manage with proper attention -- wouldn't be worthy of an abortion, but something as serious and disabling as down syndrome? I know that the individuals who have it often lead relatively good lives, but they die young and often suffer quite a bit during their lives.

I would urge the parents of these children who advocate against testing or termination upon a positive test to examine how much of their opinion is based upon their own need to care and love for their child. Yes, your child is likely wonderful and kind -- most people with down syndrome are incredibly nice -- but are all the struggles they go through worth it? Wouldn't it be good to abolish something as clearly problematic as down syndrome, to effectively cure it?


This "modern" man's view of my Lily has me Strengthening My Core.

40 comments:

Sydney said...

Outrageous! If God choses to give your baby Dwon Syndrome, then He knows you can handle it. It is a blessing, not a curse. How could someone give up something as miraculous and precious as a life, and all because of a few possible bumps in the road? It is so sad that people can be so closed minded to think like this. Lily is a wonderful, beautiful blessing!

Becca said...

Oy. This topic has been making me crazy for the last few weeks, and I have been avoiding all the articles.

I did just want to pop in to say how much I LOVE your new header photo!!!

Lori said...

SAD!

Lori said...

And who decides which diseases are worth living with and which ones aren't - sad and scary!!

Popeye said...

HMMM...me thinks me hears the pitter patter of Obamacare in that article...

Elisabeth said...

I heard about this new test earlier today and was horrified. I weep for all the children with Down syndrome that will be aborted and all the families that will never know the joy of having their precious child because of this test.

Patti said...

Apparently "modern women" decide.

Tara said...

STOP reading the comments on articles about Ds! Really, Patti, it's just depressing and distressing and will get your dander up every time! Hugs to you, my friend.

Ashley said...

That. makes. me. sick!!!!
How would she like it if WE abolished HER from the face of the earth? because, honestly, she has wayyyy more problems than people with Down syndrome supposedly have!

Patti said...

Tara...I think you might be right.

Ilisa Ailts said...

emotions aside (not that they should or need be), it is just all so untrue. until i have down syndrome, I cannot speak of what life is exactly like for those who have it. from the outside there is indeed some suffering (illnesses and families during initial diagnosis, and some discrimination), as there is among all mankind. however, there is so very little true suffering that they cause amongst others. crime? demands? take, no give? we could all go on and on. unfortunately we will not erase all negative views but we can sure create some positive ones! and for that I celebrate. I celebrate our blogs and our little ones that we can be proud of!

fckopp said...

Good grief Patti, I could not even bring myself to read the article. I started having an anxiety attack. I feel smothered by the mear thought of not having our Lily or all the babies with or w/o Ds.

Last Saturday was the 38th anniversary of Roe vs Wade and I was listening on EWTN to all the marchers/speakers etc that were in DC yesterday. I was driving and balling and pumping my arm in agreement, those driving by probably thought I was some crazy old lady who shouldn't be driving.

I pray for people like the one who wrote the article to see the error of their ways here on earth before they meet our Heavenly Father. I weep because they are making Him weep. I feel smothered because there is nothing I can do but pray. I feel physically helpless but Spirtually strong. I cannot "let go and let God" I must storm heaven, like the woman in scripture who would not let the judge alone until he gave in.

Yes, I suspect Popeye is right on...shades of Obamacare. Even Marxism.

Yes, Patti, stop reading those negative articles. Just trust in God to guide you if you should ever encounter such ignorance face to face. I would probably want to punch them in the face but that would only put me on their level.

Sign me "ranting and raving in defence of my Lily and others for their RIGHT TO LIFE."

Ashley said...

Ok, well, not abolish her as a person, but abolish her way of thinking most definately!

kecia said...

Oh My! Doesn't it just break your heart to hear people voice these feelings? If they only knew......

sunnylattegma said...

Appalling.....ignorant....Marxist....

Patti said...

Marxist...that was the word I was looking for when I replied to her comment on the article. I used "hitleresque" but Marxist works as well.

Annie @ The House That Jade Built said...

These articles are so maddening - I am with Tara I can barely stand to read them. When we first found out Ollie may have DS we opted out of the amnio b/c of the risk. So we don't know her chromosome count either way, but most likely she has DS. And that's perfectly fine with us. I have found out that God has a plan and a purpose for every thing he does. And HIS plans are always better than mine anyway! When we found out Ollie had soft markers I was so maddened to learn that 90% abort - how why? I just couldn't fathom it or understand it. She's still my child no matter what & I'll protect her and love her just like my other children. We have been lucky to have pretty spectacular doctors. However, one lady doctor - she's very very nice, but you can tell she has no idea how to talk to us. She keeps asking if I need counseling & looks at us like we are the "weird" parents. I think because we are taking the news so well. I do agree more doctors need education on how to talk to mothers & maybe less mothers would abort. I am so thankful I do not have a "modern woman's" view - she doesn't know the joys in life she is missing out on. Life isn't perfect, but that's what makes it beautiful.

aimee said...

I read something on this not too long ago and my jaw dropped! I think it's outrageous that people could even agree to something like this. If you are blessed enough to have a sweet child with DS you should enjoy it every day of your life!

Adrienne said...

Oh, this poor soul. So lost. Interesting that she points out that indiv. with DS are usually happy and nice but basically since they come with other problems-is it worth it, is their life really worth living? Are you freakin' kidding me?! People like this are just so...lost. That's the only nice word I can think of. LOST. It's just too bad. And sad. Very sad.

Race Bannon said...

I think you all are confusing Marxism with what the Nazis did...but who can blame you when the Vice President of the United States doesn't know he works for a Socialist.

What "The Modern Sound" is advocating, is just what the Nazis did. However, they may not see it like that. It is hard to make a reasoned argument to them, but if they never hear it, they can’t know it.

That being said…

…while they may be non-violent, they must be monitored. You can't bury your head in the sand because they speak disgusting words. It is people like that that have brought about abortion on demand, “planned parenthood” and other code words for “I don’t want you to have too many children, I don't want you to have that child.”

I would like to meet with "The Modern Sound" to introduce them to all their own imperfections, and while slight they might seem to them, if the goal is reduce all suffering…then I shouldn’t have to listen to them anymore.

Patti said...

Race...that is pretty much what I told "Modern" in the comment section on that article. Don't know if she went back to read, though.

And while she *may be non-violent..she still made me want to pick up Lily and run for the hills.

*P.S. When are you going to show me how to italicize in the comment section??

Ginger said...

< i > word < / i >

(minus the spaces)

Just like this

Kellan's momma said...

People like that are beyond reasoning with, or attempting to change their mind, they aren't worth getting too upset over. I totally agreed with one commenter, Amanda, who said: "Parents of children with DS: Get your kids out there! Introduce them to everyone, be very active with your kids. The more people your kids touch, the more people will know that DS is not a big deal. People have a right to make their own choices. We have the obligation to educate everyone who doesn't know the joy of loving a person with DS. Our pop culture is very often the only education most Americans get about most topics. Therefore, the more we see our kids with DS in TV shows, catalog ads, TV ads, movies, anywhere that typical kids appear, our kids should appear too. Exposure is the most effective way to educate people and shape their opinions."
I also totally agree with the discussion that doctors have poor education on how to deal with prenatal diagnosis, and that they tend to portray Ds negatively to pregnant parents. I did not have a prenatal dx, I knew no matter what the tests said, I would never terminate. My hospital/clinic has a wonderful genetic counselor, who is terribly under used, but I knew about because I work with her. My goal is to get all of our OBs to call her in on EVERY prenatal dx. I can then be called if the parents choose, to give them a "real life" view of Ds. I wouldn't change a thing. I love my son fiercely, and God help anyone that ever tell me he shouldn't have been born!! He is not a disease or illness, he is a child! (sorry, the article did get me a bit worked up!)

Anonymous said...

i cant even tell u how outraged i am. how about we just abolish IGNORANT and idiotic people like this woman?! the world would be a better place.

you, "modern" woman, make me want to vomit..and YOU are the problematic one here, not my little sister with DS. get your cranium checked.

(and no i dont apologize for what i just said)

Anonymous said...

Oh Patti- this comment this lady posted is just, well, I do not even have words. So sad that babies with down syndrome are targeted for abortion. I read somewhere that like nine out of ten babies with down syndrome are aborted. That broke my heart. I cannot even imagine our world without our children. God knitted them together in our wombs perfectly. And I am so thankful for mommies like you and so many others that are blogging and showing how beautiful our kids with down syndrome are. They are people like anyone else that deserve life. Love, Cara

Patti said...

Ginger- thank you!!

Anonymous #1~ I wish you'd just say what you mean! ;) seriously, I love it when people are passionate when it comes to defending our kids- don't ever apologize for passion on My blog!!

Sarah B said...

As a Nursing Student this new test has come up in classes and discussion. I have one family member and a good friend with DS and have a heart for adoption. I am sad to say that even within the medical profession/schooling there is much ignorance of DS. It is taught as a "problem", as if it needs to be fixed or removed. Every time this happens I confront the professor and ask if they know anyone with DS, and if so do they seem unhappy, suffering, or sick to you? Have you ever met a person with DS who has a job? Who drives a car? Who is married? Who went to college? Because I have been blessed to meet those individuals, and they are no different from us.
Every family can have its heartache over medical diagnosis, I had cancer as a teen. Every family can have a level of suffering due to health, economy, living situation, etc.
Termination because of probable suffering would truly doom us all as humanity, for we all suffer, we all have a time in which we will join our God, and we all have problems. This does not mean we give up, stop living, stop loving, stop having faith. Quite to the contrary!
ALL life is worthy of love, all life is good, and all of us are perfectly, wonderfully made just the way we are.
I send my prayers out daily and now have much more to add. I pray God given strength to you all, to all of us.
God Bless

nicole said...

Modern's comment about some diseases not being "worthy of an abortion" is appalling! What a twisted view. Looks like the father of lies is at it again.

Patti, your strong C.O.R.E. (Christian Outlook & Real Enlightenment) is inspiring to us all. We'll all keep fighting the good fight!

Love this quote, "When someone asks you 'think about what Jesus would do', remember that a valid option is to freak out and turn over tables." ~ Unknown. Sometimes a little "righteous anger" is just what we need.

nicole said...

Oh, forgot to say ~ I would love to have a front row seat at a debate between Modern & Race.

Race said...

Ginger!, don't tell her all the secrets!

Or this one!

stephanie said...

I think I hear a post on Heroes -Talk screaming your name!! Anytime you want to let it rip!! Let me know!!
People like Modern make me sick. And if you ask me we cannot stop reading these uncomfortable articles and even more uncomfortable comments. Then we as advocates disappear too.
It hurts and it makes my stomach turn, but these ignoramuses really need to be reached. and granted most will turn a deaf ear or just laugh us off but, some will change.

Patti said...

Love this quote, "When someone asks you 'think about what Jesus would do', remember that a valid option is to freak out and turn over tables." ~ Unknown. Sometimes a little "righteous anger" is just what we need.

I love this quote, Nicole!!! I know my husband is going to want to use this in a sermon:)

Stephanie..I've got something in the works, I would love to contribute!

Race...but can you do THIS ???

CKopp said...
This comment has been removed by the author.
CKopp said...

Now the Jeannie is out of the bottle

Melissa M said...

I've been thinking about this post since I read it yesterday but didn't have time to comment then. I think the issue isn't the test really, but rather the ignorance people have towards Ds. When I was pregnant I made the mistake of visiting a board on BBC on terminating for medical reasons. Most of the women there aborted because of Ds, some aborted with just a 'positive SCREENING' for Ds. Which is just crazy, but that's a whole other topic. As I was reading the board, with all it's dire predictions on Ds, and how awful my life, and Claire's life would be, I realized they didn't really KNOW. And really unless you've been in a situation, any situation, you just don't really know. Did I think my life was going to be burdened by having a baby with Ds? Yes, I did. Was I wrong? Yes, I was complely wrong!

It all comes down to knowledge. We know the truth and they don't...

Anonymous said...

I too believe that education is the key. People who believe a person with Ds has a life without meaning haven't actually met someone with Ds.

I am pro-choice... I would never have an abortion myself and would be thrilled to live in a world without abortion. I was horrified to learn how many are killed just because of Ds.... Who has a guarantee in life? My child could get sick or injured any day and be more disabled than a person with Ds. Does that mean she should be killed?

It just doesn't make sense. But education is key...

Deanna said...

I'd knock on his head and say, "is anybody home?" because that's about all he deserves! Outrageous!

Kellan's Mom said...

I can tell you have very little experience with Down syndrome, so I really don't blame you for your comments. I hope you will take the time to educate yourself to better understand this diagnosis. It is not a disease or illness. People with Ds do not suffer because of it. THey suffer because of the misinformed and uneducated that surround them. People with Ds do not necessarily die young, they can live healthy and productive lives. By aborting all fetuses with Ds you will not "cure" it. God's children are all a gift, they are given to us just as He wants them to be. A child with Juvenile Onset Diabetes will suffer no doubt, and probably live a shortened life due to complications from it. A child with Cystic Fibrosis will undoubtedly suffer, and also not live probably past 40. So should we abort these fetuses too? If we seek to only give birth to the "perfect" child, we would abort millions of fetuses per year. None of us are perfect. Would you be here if your mother knew what flaws and medical issues you would have? My son with Ds is 16 months old, and my youngest of 4. I did not know prenatally that he had Ds. I chose not to test, as I wouldn't have chosen termination anyway, but I also never thought it would happen to me. But it did, and because of it our family is so much stronger and closer, not just our immediate family, but extended too. Everyone loves Kellan. I have made so many new friends the past 16 months it's amazing, and people that are so giving and loving and unselfish, people I long to be like. I am a better person because of my son. I hope you will open your mind and do some research on families with kids with Ds. You don't have to look far, many of us have blogs that tell all.

Roo's Mom said...

Hi Patti,

I posted a reply to "Modern Sound" under the name "Suffering in common." I need to tell you, though, that having been in this new world for nearly 8 years (Roo will be 8 in March!), that comment was really tame. I've seen far, far worse. I used to post comments all over responding to the insensitive and ignorant statements made by others, some just because they are bigoted and misinformed, and others in the name of "advice," but ended up trying to steer clear of the comments section on this type of article because reading what some people wrote just made my blood pressure go up!

Keep up the good work you are doing with your blog. Your work on adoption and also on getting the faces of so many beautiful people with Down syndrome out there, is what will ultimately chip away at the prejudice and ignorance all too prevalent in our so-called "civilized" society.

Monica said...

Disgusting. "Modern" means to destroy anything that isn't worthy in their eyes? A cure to Ds? Eugenics is not a cure! It's a symptom of the world getting too dark and not valueing all life from conception to natural death. Our kids need to be out in the world, showing others that it's "no big deal" and they're not suffering. Who suffers more? The person who doesn't like the face they see in front of them that looks a little "different". Appalling world view. You've done a great job so far, Patti! So glad to know you.