Just thinking today about the miracle you are..so fragile and tiny, but so strong. You're a fighter, baby. You beat the odds- 43% of babies with Down syndrome in the womb don't make it to term. 92 % of babies diagnosed with Down syndrome in the womb are terminated. 50% of all babies with Down syndrome have a serious heart defect... You are a miracle. You are a blessing. You are strong.
In your ten weeks of life you've had multiple blood draws, oxygen tubes, thyroid screenings, chromosomal tests, a blood transfusion/exchange procedure, 3 echocardiagrams, a feeding tube, breathing treatments...but you rarely cry. You still smile when you're sick, you gaze unblinkingly into our eyes as we tell you how much we love you, and with those beautiful blue eyes you tell us I love you too.
You are pure.
Having you has changed my heart forever. You've made me value life- the miracle, the gift, the joy of LIFE. I'll never be the same.
You are beautiful.
Daddy and I are so in love with you. In ten short weeks you have wrapped us around your tiny little finger- that bent little finger that tells us you are different, because you need us more. And that's not a bad thing. In fact, that is a fabulous thing. You'll never outgrow us.
You are unique.
Three years ago, after we had your brother Jackson, I told Daddy I wanted one more girl. I told him I had a name I loved. Daddy said he already had a name too. I said okay, but my name was what we were going to name our next girl. Daddy laughed and told me his name- Lily. And that was the name I was going to tell him. We knew from that day that some day we were going to have a baby girl and name her Lily.
All along, God was waiting to send us you.
You are loved.