It has taken Mama a few days to find time to write about our ultrasound last Wed. Life doesn't slow down around here!
I'll back up to the beginning of the appointment. The sonographer and the doctor are a husband/wife team from OHSU. As I said previously, they are the best in the region. They scanned your heart for ten, maybe fifteen minutes, and talked "in code" to each other. They both kept mumbling half-phrases to each other, it was really funny:) For instance Dr. Rice would say "Can you get a better picture of the-" and her husband would zoom in on something and say "-well I tried to, but here's a different angle of the-" and she would say "I can see why they thought it was a-" and he would say "-but there's nothing I can see that would-"andhe would say "well, I do see a heavy tissue there but-" and he would say"I'll get that shot next after the-" ....at one point I thought I understood what they were saying, so I interjected "They never actually saw a canal, it's just the way the valves were lining up" to which the sonographer said "Oh, okay, well-" and the doctor left the room and came back in and said "okay, now let me see that-"
....FINALLY (after what was really just ten minutes, but seemed like forever of waiting!) the doctor went out of the room, and came back in with a printed out picture of two hearts- one with an av canal defect, one without- very much like the one I posted on your blog a few months ago! She sat down and said "Well, this is what an av canal defect looks like" and explained what I have been studying on the internet for weeks. She concluded by saying "And we see NO signs of any canal whatsoever." I can't even tell you, Lily, how huge of a grin my face broke into in two seconds flat. Like light just poured into that room, and weeks of waiting and wondering and praying and asking God for GOOD NEWS and a miracle, or whatever it took- just ended with one little sentence. Even though I have had a tremendous peace about you through everything, I don't think I realised how much of a "weight" I was feeling...until the doctor spoke those words and I just breathed this giant SIGH of relief!!
As a side note...Dr.Mary Rice is not at all what I would expect of a pediatric cardiologist..she looks like a friendly Grandma with a cute bob of dyed hair...with a little colorful kids' hair clip stuck at an awkward angle to hold her hair back from her forehead...big glasses, reminds me of Marcie from the Peanuts cartoon...and dressed like a Grandma with a white coat on..I just have to post a picture to remember her in the future...
Isn't she a crack up?
But when she opened her mouth- and started explaining everything about hearts- all doubts about her professional capabilities rolled away:) This lady knows her stuff!
And when she told us she saw NO av canal defects- she smiled that big happy smile too, and she looked like the most beautiful angel on the planet to me!!! Isn't that funny? I thought the first doctor, Dr. Katz, looked like a giant toad, and I have to say I was not happy with him.
Dr.Rice went on to say that every baby has a small "flap" in their heart, that closes on its own after birth. This is because the heart functions differently in the womb than in "real life." Your "flap" looks like heavy tissue, instead of a solid "flap". However, this might just develop into a true flap after you are born- in which case no treatment would be necessary. Dr. Rice said we need to get an ultrasound for you at around 3 months of age to see if that flap has closed. If it hasn't, it can be fixed by a catheter and NOT open heart surgery!! Thank you God!!
I asked her about our "odds" of downs syndrome...she said they definitely just improved. 75%of children born with an av canal defect (which we now know you don't have) have downs. At this point we don't even know if you have this flap defect (atrial septal defect, or ASD)...she said 50% of babies with downs have heart problems, so it's all in how we look at it.
We are just thrilled beyond belief that you do not have to have open heart surgery! When I asked about delivering at OHSU, the doctor said there is absolutely no reason why I can't deliver in Corvallis. She said this is very minor, and definitely will not cause any problems at birth. In fact, a lot of people born with this never require treatment for it, because often it just resolves on its own over time. Yay!!
Soooo.....now we go back again for another level II ultrasound on Dec. 3rd to check on your kidneys. They were enlarged at the last 2 ultrasounds, and the doctors want to keep an eye on them. I have talked to SO many people whose babies had one enlarged kidney, or both enlarged, and a labor and delivery nurse also told me this is the most common "abnormality" found on ultrasounds. Still, we are praying for everything to look normal in December!
All in all, little Lily, we are getting SO excited to see you and hold you! The days are flying by quickly, and before we know it February will be here!
I am exhausted, so I am calling it a night...we all went to the dentist today- no cavities for anyone, praise God! Miracles happening around here left and right !:)
Sweet dreams and all my love,
Your Mama oxox
P.S. So much for Dr. Katz's earlier statement "I am 90% sure that what I'm looking at is an av canal." Either you are in that ten percent...or God did a miracle! Either way, I'm glad you proved him wrong!